Monday, July 30, 2012

Continuing with Batten

We enjoyed a family vacation last month.   It was William's first trip to the beach, and he enjoyed it.
The results of the his St. Louis eye exam (ERG) indicated moderate rod and cone dystrophy, a part of the Batten disorder. We were hoping that the sight loss would be mild, but I suppose moderate is better than severe.   
William has been accepted by Make a Wish Foundation for a trip to Disney World. We will be visited soon by the Little Rock representative.
Also, we are facing having to make a major decision, and need peace that we are making the “right” choice. We need your prayers! Thanks!!