Monday, July 30, 2012

Continuing with Batten

We enjoyed a family vacation last month.   It was William's first trip to the beach, and he enjoyed it.
The results of the his St. Louis eye exam (ERG) indicated moderate rod and cone dystrophy, a part of the Batten disorder. We were hoping that the sight loss would be mild, but I suppose moderate is better than severe.   
William has been accepted by Make a Wish Foundation for a trip to Disney World. We will be visited soon by the Little Rock representative.
Also, we are facing having to make a major decision, and need peace that we are making the “right” choice. We need your prayers! Thanks!!


  1. We are praying for all of you!

  2. Praying for you Braley and the family!

    1. No decision is ever easy when it comes to our children. I am positive you will be guided by God when making that "right" choice. We love you all. ALWAYS in our hearts and prayers.

      Its so refreshing to hear all the wonderful memories you are creating with your family!

  3. William sure is blessed to have the two of you as parents and Addie as a strong big sister. Whatever decision you make will be the right one, as it will be one undoubtedly made with love. I am certainly keeping all of you in my prayers, asking for unfailing strength for you and William through this journey. Love you guys.